GA4GH and IRDiRC have developed model consent clauses for rare diseases research, in order to improve data interoperability, to meet the informational needs of participants, and to ensure proper ethical and legal use of data sources and participants’ overall protection
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Regulatory and Ethics Toolkit, ICF guidelines
Published by IRDiRCECRINGlobal Alliance for Genomic and Health (GA4GH)
Clinical Trials Toolkit