GenOmics 2024

Published by FONDATION MALADIES RARES

Genomics

The Fondation Maladies Rares is pleased to announce the launch of its “GenOmics” 2024 call for projects.

The aim of this AAP is to support hypothesis-driven research projects aimed at exploring the genetic and molecular basis of rare diseases using NGS approaches (WES, WGS, RNA-seq, small RNA-seq, ChIP-seq, Methyl-seq, etc.).

Support from the Fondation Maladies Rares will give project leaders access to innovative high-throughput sequencing technologies for the analysis of exomes, genomes, transcriptomes or epigenomes.

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Towards a Concrete Improvement in the Quality of Life of Patients with Autoimmune Myasthenia

Published by FONDATION MALADIES RARES

Autoimmune Myasthenia

The Fondation Maladies Rares and UCB have joined forces to offer a €30, 000 research grant to a humanities and social sciences (HSS) research project focused on findingconcrete, short-term ways ofimproving the life course of patients suffering from generalized autoimmune myasthenia gravis.

The grant will be awarded to a research project focusing on the individual, family and/or social consequences specifically linked to generalized autoimmune myasthenia gravis, in order to gain a better understanding of the impact of this disease, and in particular muscular fatigability, on quality of life at the level of the individual, couple or family, for example.

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Chan Zuckerberg Initiative

Published by Chan Zuckerberg Initiative

Chan Zuckerberg Initiative

In addition to traditional grantmaking to support people and organizations working toward our missions in Science, Education, and within our communities, the Chan Zuckerberg Initiative makes venture investments in impact-focused companies, builds tools and products that we can scale and give away for free, and supports capacity building to achieve progress across our work.

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Wellcome Discovery Awards

Published by Welcome

AwardGrant

This scheme provides funding for established researchers and teams from any discipline who want to pursue bold and creative research ideas to deliver significant shifts in understanding that could improve human life, health and wellbeing.

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Investment from European Investment Bank

Published by EIB

DebtInvestment

The European Investment Bank and the European Commission have been working together for decades to develop innovative funding solutions. From traditional areas such as infrastructure, to emerging topics like research and innovation or projects to tackle climate change – our successful mandates and partnerships across Europe provide a solid foundation of finance opportunities. To discover more about some of these past initiatives, please see the list below.

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Oxford Invention Fund (OIF)

Published by Oxford

University of Oxford

OIF will invest in early stage technology projects in order to make a return which is funnelled back into this self-sustaining “evergreen” fund. The OIF is endowed by charitable donors to the University as part of the Oxford Thinking campaign. It supports early-stage, proof-of-concept activity.

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Christopher Duncan Horn Memorial Award

Published by Muscular Dystrophy Association National Office

AwardDuchenne Muscular DystrophyDMD

MDA has invested over $125M in the development of gene therapy for neuromuscular diseases (NMDs) over the past 20 years. To continue to lead the way in this important field of medicine, MDA held a summit in January 2022 to address the challenges in safely delivering AAV-based gene replacement therapy to NMD patients. In this meeting, top experts and stakeholders convened to talk openly about adverse events linked to clinical trials in the field. Although experts collectively agree that gene therapy holds great promise in addressing the underlying cause of many neuromuscular diseases, there are still many challenges and risks that must be overcome to fully realize the translational potential of gene therapy in NMDs affecting children and adults.

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