This is TREAT-NMD webpage, where it can be found relevant information how to find biomaterials for The basic scientific research being carried out on Neuromuscular Diseases. It can work also as inspiration for investigators conduting reasech in others rare diseases
View this resource Bookmark this resourceBiobank
the Biobanco Nacional de Enfermedades Raras (BioNER) website’s objective is to provide quality biological samples to support national and international rare diseases research. The Spanish Health Institute Carlos III (ISCIII) is the head of BioNER, being its operational and functional management and direction attributed to Instituto de Investigación de Enfermedades Raras (IIER). BioNER entered in el Registro de Biobancos with registration number B.0000886 on November 14th 2013 and the file that controls and stores the data is also registered with the Spanish Data Protection Agency (AEPD) under number 2060180217, on July 5th 2012, under the name of “Registro de Enfermedades Raras y Banco de Muestras”.
View this resource Bookmark this resourceThis website offers a set of free biomarker commercialization tools to help researchers, small and medium sized companies (SMEs), and technology transfer offices (TTOs) tackle the highly regulated and interdisciplinary landscape of in-vitro diagnostics applicable biomarkers, i.e., markers intended to provide information on the health status of a person.
The tools guide researchers and product developers through the technology readiness levels (TRL) and remind about the technical, regulatory, and business aspects of the innovation process.
View this resource Bookmark this resourceIARC has developed its own Standard Operating Procedures (SOPs) for the collection, storage and shipment of biological samples. In addition, IARC provides the links of interesting biobank websites and resources.
View this resource Bookmark this resourceThis catalogue is intended to facilitate the discovery of samples and samples data from Rare Diseases biobanks. It also provides information about sample collections and studies done on the registered samples
View this resource Bookmark this resourceThe aim of the present review is to discuss how the promising field of biobanking can support health care research strategies. As the concept has evolved over time, biobanks have grown from simple biological sample repositories to complex and dynamic units belonging to large infrastructure networks, such as the Pan-European Biobanking and Biomolecular Resources Research Infrastructure (BBMRI)
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