Guide on patient partnerships in rare diseases research projects

Provided by European Joint Programme on Rare Diseases (EJP RD)

EJPRD

The EJP RD has developed a short guide on patient partnerships in rare diseases research projects. It aims to encourage fruitful, sustainable and enduring partnerships between scientists and patient organisations, co-leading the way for systematic patient-centered research.

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Training and capacity buildling of the rare disease research and care community

Provided by European Joint Programme on Rare Diseases (EJP RD)

EJPRD

The EJP RD Training and Empowerment program aims to develop knowledge and build capacity of the rare disease (RD) research and care community through the delivery of training programs on a wide range of relevant topics thereby providing opportunities to a large panel of stakeholders.

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