Rare diseases patient registries

Provided by Cellosaurus

Cellosaurus

The Cellosaurus is a knowledge resource on cell lines. It attempts to describe all cell lines used in biomedical research, including:
Immortalized cell lines
Naturally immortal cell lines (example: stem cell lines)
Finite life cell lines when those are distributed and used widely
Vertebrate cell line with an emphasis on human, mouse and rat cell lines
Invertebrate (insects and ticks) cell lines

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Global registry for human pluripotent stem cell lines

Provided by Human Pluripotent Stem Cell Registry (hPSCreg)

HPSCREG

It aims to provide to the community

a central and searchable hub for available hPSC-lines
a central registry of clinical studies based on hPSC-lines
a standardized identifier for hPSC-lines and register of these standard names
a trustworthy data source for hPSC-lines by verifying the ethical and biological conformity of registered lines based on community standards
comparability of quality standards in hPSC research
certification of quality and ethical provenance of hPSC-lines
a platform where any scientist or institution generating or working with PSC lines can register their cell lines, projects or clinical studies

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preclinical platforms

Provided by GENETHON

Genethon

Genethon has platforms available which are capable of generating and collecting all the preclinical data which make it possible to evaluate efficacy, toxicity and adverse effects of a gene therapy product, including functional exploration, imaging, histology, cytology as well as an animal experimentation center

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