Data & Databases

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Clinical Research Metadata Repository

Provided by EOSC-Life

EOSC Life

Clinical Research Metadata Repository (including COVID-19 data), allowing researchers to access clinical studies and related data objects. These include, for example, protocols, information sheets and consent forms, data management plans, statistical analysis plans, case report forms, results, publications, descriptive metadata, etc. MDR contributes to making clinical research data from all disease areas FAIR by increasing data Findability. Browse and search metadata on clinical trials—as well as all related documents
FAIRsharing.org (standards, databases, policies) is a place to discover standards, repositories and data policies and how they interlink. It also features a prototype educational page on standards. The resource serves all disciplines and has been adopted by funders, publishers, RDA and other organisations.

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Pharmacoepidemiology and pharmacovigilance Resource Database

Provided by European Network of Centres for Pharmacoepidemiology and Pharmacovigilance (ENCepp)

ENCePP

The Resource Database is an electronic index of available EU research organisations, networks and data sources, including patient registries, in the fields of pharmacoepidemiology and pharmacovigilance, and is a key component of the ENCePP web portal. All information contained in this database is provided and maintained by the listed organisations, data providers or registry holders.
The Resource Database includes information on expertise and research experience across Europe and serves as a hub for both researchers and study sponsors seeking to identify organisations and data sets for conducting specific pharmacoepidemiology and pharmacovigilance studies in Europe.
The database is fully searchable and allows the identification of research centres, data sources and patient registries by country, type and other relevant criteria.

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