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Patient Engagement Resource Center

Published by EATRIS

Research and Drug DevelopmentPatient EngagementPatient Information

The Patient Engagement Resource center is an easy to navigate platform to help researchers get started with patient engagement in research. This toolbox provides helpful resources to help researchers understand the basics of patient engagement, and guide them through the different phases of patient engagement, from planning to conducting and evaluating.

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AMED Clinical Innovation network – Diseases-related Registries

Published by IRDiRC

Research and Drug DevelopmentClinical DevelopmentPatient RegistryAgency For Medical Research and DevelopmentJapanInitiative on Rare DiseasesClinical Innovation NetworkCinical Trial

Japan Agency for Medical Research and Development (AMED) leads the Initiative on Rare and Undiagnosed Diseases (IRUD) program. The program provides patients across Japan suffering from undiagnosed diseases with a diagnostic strategy that involves genetic analysis

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