Funding Sources

Sources of funding for the Innovation in Rare Diseases

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Chan Zuckerberg Initiative

Published by Chan Zuckerberg Initiative

Chan Zuckerberg Initiative

In addition to traditional grantmaking to support people and organizations working toward our missions in Science, Education, and within our communities, the Chan Zuckerberg Initiative makes venture investments in impact-focused companies, builds tools and products that we can scale and give away for free, and supports capacity building to achieve progress across our work.

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Christopher Duncan Horn Memorial Award

Published by Muscular Dystrophy Association National Office

AwardDuchenne Muscular DystrophyDMD

MDA has invested over $125M in the development of gene therapy for neuromuscular diseases (NMDs) over the past 20 years. To continue to lead the way in this important field of medicine, MDA held a summit in January 2022 to address the challenges in safely delivering AAV-based gene replacement therapy to NMD patients. In this meeting, top experts and stakeholders convened to talk openly about adverse events linked to clinical trials in the field. Although experts collectively agree that gene therapy holds great promise in addressing the underlying cause of many neuromuscular diseases, there are still many challenges and risks that must be overcome to fully realize the translational potential of gene therapy in NMDs affecting children and adults.

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Primary Bone Cancer Consortium Funding Support

Published by Bone Cancer Research Trust

GrantBone Cancer

The Primary Bone Cancer Consortium Funding Support from the Bone Cancer Research Trust provides funding for UK and international consortium working on bone sarcoma clinical and translational research. The consortium must include researchers from at least 5 countries and at least one group must be based in the UK. Applicants may apply for up to 240,000 GBP for projects spanning at least 3 years. Applications close on July 1, 2022.

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Macular Degeneration Research Program

Published by BrightFocus Foundation

FellowshipMacular Degeneration

The Macular Degeneration Research Grant from the BrightFocus Foundation provides funding for researchers worldwide with innovative research leading to greater understanding, prevention, and treatment of age-related macular degeneration. The Postdoctoral Fellowships from the Program are intended for researchers in the final stages of their mentored training and provide 100,000 USD/year for a period of 2 years. The letter of intent is due at 5 pm EST on July 28, 2022. Those who are invited to submit a full application must do so by 5 pm on December 5, 2022.

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Society Sponsored Research: MPS

Published by National MPS Society

GrantMPS

The Society’s Board of Directors is pleased to announce the approval of $725,000 in new funding to be awarded as part of the Society’s competitive research grants program for 2022. These funds are made available through the great generosity of friends of the Society and especially through the efforts of our membership families. This year, the funds are dedicated to be used to further the research needs of syndromes as described below.

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Transformative Research Award: Retinal Degeneration

Published by Fighting Blindness Canada

AwardRetinal Degeneration

Fighting Blindness Canada is launching the Transformative Research Award (TRA) program to fund strategic areas of need within vision research.

The 2022/23 competition will fund innovative and ambitious research that will advance the development of new therapies for retinal degenerative diseases. This competition is open to discovery, translational or clinical research. The program is open to Canadian or international investigators, with a budget of up to $1.25 million over five years per award. This competition has two stages: Letter of Intent and Full Application (by invitation only).

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Prader-Willi Research Grant

Published by Foundation for Prader-Willi Research

PWSPrader-Willi syndromeGrant

The Foundation for Prader-Willi Research (FPWR) is dedicated to supporting research to advance the understanding and treatment of Prader-Willi syndrome (PWS). We invite applications for funding on an annual or semiannual basis, in response to a Request for Applications.

FPWR accepts applications in all areas of research relevant to PWS, but we are particularly interested in supporting projects that will lead to new interventions to alleviate the symptoms associated with PWS. FPWR accepts applications from academic, government, non-profit or for-profit research entities. Academic research applicants should have a primary faculty appointment at the level of Instructor or higher. This grant program will be useful for junior faculty in the early stages of their careers, established investigators in other areas of research who wish to enter the field of PWS research, or investigators in the PWS field who are seeking funding to support pilot studies in a new area of PWS research. FPWR seeks to support innovative, high-risk/high reward research in its early stages

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